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"Generation to Generation"

Saturday, September 04, 2010
 
How You Can Help

Help Us Fight Dysautonomia!

Our Mission Statement:

Fight Dysautonomia, Inc. (hereafter "Corporation") was incorporated in the State of Florida March 29, 2007.The purposes of the Corporation are to raise funds to support new and ongoing research and education regarding the spectrum of Dysautonomia diseases/syndrome, with an emphasis on the genetic disease/syndrome, Familial Dysautonomia.

Fight Dysautonomia, Inc. is a 501(c)(3) non-profit Corporation run completely by volunteers.No donation is too small.  Any donation is greatly appreciated and needed. Donations are tax deductible according to IRS regulations.

Make checks payable to Fight Dysautonomia, Inc. and mail to:

      Fight Dysautonomia, Inc.
      PO BOX 23145
      Jacksonville, FL 32241-3145

Or

Donate by online by check, debit card or credit card through PayPal using the link on the right.

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Other Ways to Help

Volunteers are always needed and welcome.  Please e-mail Sondra@FightDysautonomia.org  if you are interesting in any of the following positions:

Proof Readers & Link Testers
To proof read all the pages, articles and web site.  Test links and let us know if they are not working. All you teachers are welcome!

Grant searchers
We could use help finding grants for which we may qualify. If you can help with this, please let us know.

Help build our "Resources" page.
Can you assist us in finding web resources that will help others for our "Resource" page? If so, let us know.

Help build our Doctors List!
If you know of physicians that see patients with any type of Dysautonomia, please let us know.
Or write to:

Fight Dysautonomia, Inc.
PO BOX 43145
Jacksonville, FL 32241-3145

Find Press Releases and Articles
If you like to do research and know how to use the internet then this job is for you! Help us find recent press releases or articles on Dysautonomia.

Share your experiences in our "Sharing Tree".
Our "Sharing Tree" will be a work in progress as we grow we will include your stories. IE: How, when and why you first sought help for your Dysautonomia?  How long did it take for you to be diagnosed?  Who helped you get diagnosed?   What were your symptoms?  How long had you actually had symptoms?  Does anyone else in your family have any type of Dysautonomia?  What treatments helped you feel better?  Perhaps you would be kind enough to add you doctors name to our "Doctors List".

These are just some ideas for you to get started.

If you'd like to volunteer your assistance in any other way, please let us know.

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A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE (800-435-7352) WITHIN THE STATE.  REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE.  FIGHT DYSAUTONOMIA, INC.
REGISTRATION NUMBER CH23268.

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